Hi there, My name is Ian Griffiths and I've written a book all about my life living with a devastating disease called Duchenne muscular dystrophy. It Chronicles the first 25 years of my life, battling the disease that hardly anyone has heard of. On some occasions people mistake muscular dystrophy for multiple sclerosis, but the diseases are totally different. Duchenne is a X linked recessive disease that attacks the muscles from within the cell. Due to a lack of dystrophin, the cells gradually die and turn in to adipose and connective tissue that is becoming unusable. People with Duchenne usually go in to a wheelchair between the ages of 8 – 12. By the time they are 16 they will need to use cough assisting technology to help them remove secretions. Usually by they are 19 they need to use a ventilator to help them breathe. Death sadly occurs in the 20's on average. Sometimes death comes earlier but rarely a few people manage to make it into middle age.
Most days I will be updating this blog with small articles promoting my book and where you can buy it.
Please keep following,
Kindest regard,
Ian
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