Some things never change...

I often say that DMD can't take everything away and one particular things stands out today and that is a good home cooking! When I first started secondary (High) school I used to eat the lunches there, but quickly - because the food was too unhealthy - I had to bring my own. I loved the sandwiches my mom made, and the surprise about what flavour it was that day was always cool. I did that until I was 16 to 17 years old. After a time I couldn't eat sandwiches but as I said some things never change as I'm still eating home cooked foods! Thanks Mom, I love you!

Extract;
.....Originally I had school dinners until I started having stomach aches and general sickness. I switched to a packed lunch which immediately made me feel better. My mother made cool packed lunches with delicious sandwiches. My absolute favourite was ... ; it had a taste that made me feel like I was back at home...

Find out what my absolute favourite flavour was by buying and reading my book DMD Life art & me here; http://duchennemen.net16.net/buymybook.html





Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.