As most of you know I have DMD but some may not know that I
also have a mini-tracheotomy in my neck which means secretions that regularly build
up in my chest can be removed. This means that I need suction catheters fed
down my throat through this mini tube to clear away the excess mucus. The
person who does this most is my dear Mum and my does she work hard.
Each time I need suction it usually takes an hour to
complete and it may need doing three times or more throughout the day. It’s a
boring laborious task but I’m very grateful because I wouldn’t survive for long
without it. It reminded me the other day of a Victorian prison task whereby you
crank a handle turning a numbered dial to 10000. Suctioning is an everyday
thing and seems never ending but unlike the prison task it certainly isn’t
pointless.
My Mum is a real star for doing this even when she doesn’t
feel up to it. Thank you Mum it does mean so much to me and thanks for all the
myriad things you do for me.
