Available in EBOOK and PAPERBACK versions
I am always impressed at the guys and girls who live with DMD that get jobs. Some are employed by forward thinking companies and many work for themselves. I work for myself at the moment, I've written my autobiography and my second book comes out in e-book format very shortly! I'm also an artist too.
Recently I was impressed by a 20 year old who attached a lawnmower to his wheelchair and started earning some money mowing his local neighbourhood! That is really inspiring to all with DMD!
Extract;
...In fact many people have commented ... that the painting [entitled port and ornaments] looks photo realistic even though I wasn’t aiming for that. God has blessed me with this artistic talent .... You can see all my art at artwanted.com, just type in Ian Griffiths [in the search box]....
With the right attitude and drive anyone can work even in these extremely tough economic times. One should never give up! Read through my own working wonder called DMD LIFE ART & ME!
EBOOK available here; https://www.smashwords.com/books/view/69702
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
All links available in my website here; http://duchennemen.net16.net/Buy-my-book-s/
Foreword
I’m
Ian Griffiths from South Wales.
This book is a story of my
life so far up to the
age of twenty five years. I
live with and suffer from
the ill effects of DMD
which stands for Duchenne
Muscular Dystrophy. It is a
severe muscle wasting
disease and a life limiting
terminal illness. It won’t
kill you in six months in
the traditional sense of
‘terminal’, but it’s far
crueller than that, it steals
every muscle in your body
first and then kills you,
anywhere up to the age of
thirty. There have been
cases of men living past
that into their forties and
fifties but only with
drastic interventions such as
ventilators and
tracheotomies, more on this can
be found by reading on.
I
hope to cover a few things in this
book, from a history of
my childhood years to a
more detailed history from
sixteen years onwards
and finally onto my current
problems and triumphs. At
times things I write may
make you smile or may make
you pause and think about the
seriousness of life with
this devastating disease.
I really hope there will
be a cure but currently for
us supposedly ‘older’ guys
with DMD (over twenty
one), there seems very little
hope. If I don’t see a
cure in my lifetime, I hope
my campaigning helps in
some way bring it about for
future generations, so
another child won’t have to see
their body wither and
die before their time.
Welcome to my blog!
Hi there!
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
Showing posts with label right. Show all posts
Showing posts with label right. Show all posts
Wednesday, 18 July 2012
Monday, 4 June 2012
The importance of the right kit
Available in EBOOK and PAPERBACK versions!
Having the right equipment is absolutely vital for those with DMD. If those with Duchenne's have the wrong wheelchair pain will be a major problem. For the younger ones with DMD writing on a normal table can place a strain on their bodies, so a writing wedge or a specially constructed table is really helpful.
Here's my experience of poor equipment, extract;
...One time I have fallen out of a sling because it was poorly designed, and crumpled up under my body pressure. It flung me to the floor from a few feet in the air; [thankfully] I did no major damage. The whole event shook me up a bit and that sling was quickly thrown out!...
You can see more examples of the right and wrong equipment in my book DMD LIFE ART & ME!
Get you very reasonably priced EBOOK here; https://www.smashwords.com/books/view/69702
Available as a PAPERBACK here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
Having the right equipment is absolutely vital for those with DMD. If those with Duchenne's have the wrong wheelchair pain will be a major problem. For the younger ones with DMD writing on a normal table can place a strain on their bodies, so a writing wedge or a specially constructed table is really helpful.
Here's my experience of poor equipment, extract;
...One time I have fallen out of a sling because it was poorly designed, and crumpled up under my body pressure. It flung me to the floor from a few feet in the air; [thankfully] I did no major damage. The whole event shook me up a bit and that sling was quickly thrown out!...
You can see more examples of the right and wrong equipment in my book DMD LIFE ART & ME!
Get you very reasonably priced EBOOK here; https://www.smashwords.com/books/view/69702
Available as a PAPERBACK here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
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