Hoist memories

Available in EBOOK and PAPERBACK versions

Now that my hoists are both being replaced I started thinking about all I'd been through with them. I first remember using them when I was ten, when everything was new and it came with a blue sling that had metal attaching hooks. I remember falling out of an inferior sling thankfully not hurting myself! I've had thousands of baths and bed time routines through happy and sad times.

Extract;
.....hooks the grey sling surrounding my body onto the metal crossbar hanging from the hoist and I’m raised up into the air. My arms are carefully positioned on my legs so that my shoulders won’t hurt. Next I’m moved over my wheelchair by the touch of the button and carefully lowered in......

Here's to more memorable moments to come when my new hoists get installed! Read more about my hoisting memories in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

Small Victories

Available in EBOOK and PAPERBACK versions

As I was waiting to go to bed my sling strap was resting on my arm in a really irritating and itchy place. So I decided I would try to move it myself. What an arduous task indeed! I moved my hand the few millimeters that it can move and moved my leg the few centimeters it can move. After a battle for two minutes or more I finally won! I got it to move, what a victory it felt like, it even made me giggle!

Extract;
.....[One summer a few years ago] I was trying to hit a red cricket ball that my father was gently throwing towards me.  With a swift action I just about managed to take a small swing at the ball; I could only move my hand an inch or two [because my arm was propped up]. The ball would just hit the wooden stick and drop like a stone onto my clear plastic wheelchair table....

It is always a struggle moving the tiny amounts that I can but it's so liberating to do something for myself! That's why it is so important to focus on what you can do whether you have a disability or not! Read more about my small victories in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-book-s/



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

The importance of the right kit

Available in EBOOK and PAPERBACK versions!

Having the right equipment is absolutely vital for those with DMD. If those with Duchenne's have the wrong wheelchair pain will be a major problem. For the younger ones with DMD writing on a normal table can place a strain on their bodies, so a writing wedge or a specially constructed table is really helpful.

Here's my experience of poor equipment, extract;
...One time I have fallen out of a sling because it was poorly designed, and crumpled up under my body pressure. It flung me to the floor from a few feet in the air; [thankfully] I did no major damage. The whole event shook me up a bit and that sling was quickly thrown out!...

You can see more examples of the right and wrong equipment in my book DMD LIFE ART & ME!

Get you very reasonably priced EBOOK here; https://www.smashwords.com/books/view/69702

Available as a PAPERBACK here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.