Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Monday 23 July 2012

Introducing my new Ebook!

I recently shared a link to my new poetry book Poetic Diversions which you can see just below this post. I realize this group is for my autobiography DMD LIFE ART & ME but this new book is certainly relevant to Duchenne's. There are roughly ten poems focusing on DMD in one chapter alone! My particular favourite is a dedication to all those young children living with DMD who stay so positive through everything that's thrown at them.

Here's an extract;
....The next poem I would like to share is called; I know what strength is:
I know what strength is...
It is that metal, that mental metal,
It is toughing it out on that lowest day but still you stay,
It is when all hope is gone but you smile through it, holding on,
Not the reserve of body builders, its just you, me and the meek,
Battling the system, but we will them, change it, make it right....

You can read the rest in my new Ebook Poetic Diversions right here: https://www.smashwords.com/books/view/206857

As ever you can still buy my five star rated autobiography DMD LIFE ART & ME here:
EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-book-s/

Foreword to DMD LIFE ART & ME


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

No comments:

Post a Comment