I used to drink gallons of fizzy drinks and eat all kinds of junk. I suppose I got into the destructive thinking of "what's the point in taking care of myself when I could die soon anyway". By living like that it was actually making me sicker, this would be true for everyone in that destructive pattern. So I realized that I needed to eat better since I had a reawakening so to speak.
Out goes the fizzy drinks and in goes the water, I can not eat junk now so I'm naturally protected from that. I eat meats, some fish, vegetables and fruit thanks to the pureed food my mum makes. I take vitamins and minerals too. It's definitely calmed my heart being off the caffeine and my skin and weight are all improved. If you eat well it also helps your mental state and I'm happier now. You may have a life threatening illness but there's no need to speed up the destruction in your body!
Extract;
...I discovered some food I could eat on the second day I was admitted. I was discussing with a nurse about my eating difficulties and they suggested that I try the puree menu the hospital had. One funny memory I have was upon seeing a pureed
corn beef hash. I enquired “this is a normal piece of meat, how am I supposed to eat it?” After my first mouthful I had realised how foolish I was as the meat thinned out and turned out to be liquidised...
Read more about food in my book DMD LIFE ART & ME!
EBOOK available here; https://www.smashwords.com/books/view/69702
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857
All links available in my website here; http://duchennemen.net16.net/Buy-my-books/
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
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