A tribute

We've lost a few brave people with DMD over the last week. It is heartbreaking when anyone with DMD dies but some weeks it's extra hard when more than one go.

Here's a tribute from my book;

This is a tribute to all my fallen comrades
They were not slain by weapons
Nor war wounds but still heroes to the end
Taken by the dark claw of this deadly muscle disease
They were strong to the fore
Strength to their core while all around muscles receded
They were workers, businessmen, artists and friends
An inner power of towering energy known no bounds
Great public orators letting all know their struggle to be equal
To be equal in standards of care, equal in love
Equal in society in a world not geared for them
From innocent childhood to paralysing adulthood
Misery not their style, happiness and warmth their comforter
No pity for them please
Just remember them
The brave forgotten few
Our brothers, our sons, our fathers, our friends.
Taken before their time

(Girls can be affected, this was just for the guys at the time)

There are more comforting words and great hope in my book DMD LIFE ART & ME.
This isn't all about selling books I mean every word, we're in this together.

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.