True Care...

Mothers are the unsung heroines of DMD and for those without a mother there's always that caregiver that goes the extra mile! These amazing heroines/heroes get a disturbed night to help turn us so we can get to sleep. They are ever vigilant and on guard looking out for us and brightening our days. Even gratitude seems very pale compared to them. Thank God for them and their skills!

After an operation as a child my mom was fantastic,

Extract;
...I had to be turned frequently every night, which meant my mother missed out on her much needed sleep....

Read more about the exemplary care I had and still have from the unsung heroine in my life in my book DMD LIFE ART & ME!

Buy the fantastic EBOOK version here; https://www.smashwords.com/books/view/69702

Also available through my website here; http://duchennemen.net16.net/Buy-my-book-s/


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.