Last night I meant to charge my wheelchair, but lo and behold I forgot. It'll last to tonight but back in my school days it was a nightmare of slowing to a gradual creep by the days end. Getting a push wasn't out of the question either. If you haven't had the pleasure of pushing a power chair, it is really heavy!
Getting to my age 27/28 and living with DMD I need to remember quite a lot, is my ventilator charged, is my wheelchair charged, do I have enough suction catheters and gloves and many more! Far more important than remembering those tiny minor things.
Extract;
...two ladies came over and saw a wire hanging loose from my battery. She plugged it back in and my power lights flickered back into life. I breathed a huge sigh of relief and thanked the kind lady. I then went on my way slowly avoiding the bumps on the uneven pavement. I got back home a few minutes later saying very little to my mother. The joys of electric wheelchairs!...
Find out more in my book DMD LIFE ART & ME!
EBOOK available here; https://www.smashwords.com/books/view/69702
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
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