Waistcoat dilemmas..

I have never seen my mother laugh so much when I was mentioning the idea of trying to get into a waistcoat for an upcoming family wedding. I was saying how it wouldn't be great to end up in A & E, clutching a broken arm on the day of said wedding! I knew that my arms would have tremendous trouble being bent back trying to fit into the waistcoat and I joked that I may break an arm!

Who said contractures don't make you laugh!

Extract;
...DMD can cause “Contractures”. Where ankle, knee, hip and arm joints have shorter muscles connected to them causing bent and deformed limbs; because of the associated Duchenne’s muscle cell death. That makes it impossible to completely straighten your arms or legs without causing huge damage and pain...

Thankfully I don't have to wear a waistcoat, so I will not need to grace the A & E department with a visit! (God willing).

Read about the lighter side of life with Duchenne's in my book DMD LIFE ART & ME!

You can buy your paperback copy of my book on Amazon here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

Also available as an E-book here; https://www.smashwords.com/books/view/69702

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.