Last night I had tremendous difficulties trying to move my wheelchair. I have a very light control which is very easy to move but I simply couldn't operate it at all. My arm was tired because I'd been typing with my mouse. Only when my arm was moved could I just barely move and get to bed.
Those moments are very worrying as you feel out of control. Thankfully because I have voice recognition I can do my work on these tired days. Perhaps I should have used it but sometimes quietly typing helps me express myself better. The DMD balancing act goes on!
I remember in school how I used to be able to eat a snack at break time but then it took too long. DMD certainly is relentless
Extract;
...A short recess was always taken at quarter past ten that lasted 15 minutes; I used to eat a small snack that was until it took me longer than a quarter of hour to eat it!...
Read more about the constant DMD balancing act in my book DMD LIFE ART & ME!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Only 18 days left!!!!!
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