Living with DMD
There's a temptation to call people who have DMD, 'DMD boys' or 'DMD girls'. I feel that is all backwards because you give the condition pre-emenence over the person. Surely we are a boy/girl/man/woman with DMD. It's good to see the person before the disease.
Sometimes even I slip up and say DMD person but I try very hard not too, because living with a stereotype hanging over you can belittle you.
DMD kid can instantly bring connotations of average life expectancies, not walking by a certain age and so on. Duchenne's doesn't effect every person living with it exactly the same, there can be big differences in all the DMD variables.
Extract; ...I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD....
Read about the person first in my book DMD LIFE ART & ME!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only a little over 5 hours left!!!!!
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