FIND MY EBOOK HERE;
https://www.smashwords.com/books/view/206857
UPDATE - This offer has ended, in fact a few weeks ago but apologies for being tardy in correcting this. :)
Showing posts with label free. Show all posts
Showing posts with label free. Show all posts
Monday, 11 February 2013
You set the price! OFFER ENDED
FIND MY EBOOK HERE;
https://www.smashwords.com/books/view/206857
UPDATE - This offer has ended, in fact a few weeks ago but apologies for being tardy in correcting this. :)
Monday, 28 May 2012
ONLY 5 hours left!
Living with DMD
There's a temptation to call people who have DMD, 'DMD boys' or 'DMD girls'. I feel that is all backwards because you give the condition pre-emenence over the person. Surely we are a boy/girl/man/woman with DMD. It's good to see the person before the disease.
Sometimes even I slip up and say DMD person but I try very hard not too, because living with a stereotype hanging over you can belittle you.
DMD kid can instantly bring connotations of average life expectancies, not walking by a certain age and so on. Duchenne's doesn't effect every person living with it exactly the same, there can be big differences in all the DMD variables.
Extract; ...I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD....
Read about the person first in my book DMD LIFE ART & ME!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only a little over 5 hours left!!!!!
Friday, 25 May 2012
JUST 3 days left.
I won't be back till there's just one day left in this ebook offer! So you really haven't got long left until this offer ends. I've had a great response with over 50 downloads so far, you can certainly increase that and it's totally FREE. Let your friends know, if they have never heard of DMD they can find out for FREE. There's no better time than now!
Extract;
...When I was about 18 months old my mother noticed I wasn’t moving around like I should have been, my sisters could run rings around me. I was often bumping into things and holding on to furniture whilst walking. My mother was obviously concerned, so she contacted the health visitor and our family doctor...
Read more about the genetics of the disease and how I've coped with Duchenne's in my book DMD LIFE ART & ME!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only 3 days left!!!!!
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
Thursday, 24 May 2012
One thing leads to another
It's strange how thinking about one thing can lead somewhere totally different. I was thinking whether I would be father one day but quite bizarrely I started searching through software on a popular shopping site. That led me to find an art program and from then on I became an artist!
Extract;
...As my father was sitting nearby I quickly showed him the new art creating
software and we bought it there and then....
After six years I'm still learning new styles and techniques. I currently have 97 pieces of art and have sold a few pieces too!
You can see some of my favourite works of art in both the paperback and ebook versions of my book DMD LIFE ART & ME!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Only 4 days left!!!!!
You can visit my art gallery here; http://www.artwanted.com/artist.cfm?ArtID=66134&IRV=36
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
Friday, 27 April 2012
Sometimes quick, sometimes gradually
During my vacation of a lifetime over in Florida, I did not do any of my stretches and consequently paid the price later on when I returned home. You really get to see how quickly DMD can deteriorate when you don't do what you need to do. Many people in the know will tell you that you should never stop stretches as a treat.
I noticed that only after two weeks it was excruciating to go in my standing frame.
Extract;
...The pain was immense after the holiday because we didn’t really do my stretches often enough (it was a vacation after all). It was absolute torture standing again in my ‘clickers’. My knees were burning; it felt like my ankles were braking. I would plead with my mother to get out of the frame but I had no choice as it was part of my physio regime...
Well I really wish I took the advice that is being given now! However currently (age 27), I don't have physio any more, partly because it would hurt and partly because I have no physiotherapist. Post 18 care leaves much to be desired in Wales!
Don't forget my free e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is free, you can get your FREE version here; https://www.smashwords.com/books/view/69702
If you still prefer the look and feel of a real book then please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
Thursday, 26 April 2012
DMD life art & me Ebook now FREE
If you know someone who might be interested in learning about DMD, then point them in the direction of this fantastic offer!! It will cost them NOTHING to learn about the devastating effects of this disease and to find out how someone lives with it positively.
Please visit here to receive your FREE ebook; https://www.smashwords.com/books/view/69702
(Offer lasts until the 26th of May, then a price of $3.00 will apply)
As ever if you are a fan of the traditional book, then you can buy my paperback version for the very reasonable price of £9.99 ($18.99) here; http://duchennemen.net16.net/Buy-my-book-s/
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
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