All being well this Sunday I will be featured in a local Newspaper article. It has information on DMD, it has an interview with me and information on my book You can look out for it in the Wales on Sunday paper or go to the media Wales website to see it. I hope it helps in one thing that I am quite interested in that being awareness. That was one of the core aims for my book, because not many 25-year-olds (as I was at the time) write autobiographies. Hopefully people reading my book, especially those who do not know about Duchenne's will ask themselves why so young? After all I am no a celebrity and neither do I want to be one. I am hoping that they would see how much of a totally devastating disease DMD is and can see why time was so pressing.
Extract;
.... I’m such a positive person that giving up and dying never entered my mind at all. The next thing I did was to write on a pad of paper my mother held under my arm. In an emotionally charged moment and through many tears I scrawled in black ink “I’m too Young to Die”.....
Read all about the above story in my book DMD LIFE ART & ME!
EBOOK available here; https://www.smashwords.com/books/view/69702
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857
All links available in my website here; http://duchennemen.net16.net/Buy-my-books/
My art can be viewed here; www.artwanted.com/thebigG2005
Foreword
I’m
Ian Griffiths from South Wales.
This book is a story of my
life so far up to the
age of twenty five years. I
live with and suffer from
the ill effects of DMD
which stands for Duchenne
Muscular Dystrophy. It is a
severe muscle wasting
disease and a life limiting
terminal illness. It won’t
kill you in six months in
the traditional sense of
‘terminal’, but it’s far
crueller than that, it steals
every muscle in your body
first and then kills you,
anywhere up to the age of
thirty. There have been
cases of men living past
that into their forties and
fifties but only with
drastic interventions such as
ventilators and
tracheotomies, more on this can
be found by reading on.
I
hope to cover a few things in this
book, from a history of
my childhood years to a
more detailed history from
sixteen years onwards
and finally onto my current
problems and triumphs. At
times things I write may
make you smile or may make
you pause and think about the
seriousness of life with
this devastating disease.
I really hope there will
be a cure but currently for
us supposedly ‘older’ guys
with DMD (over twenty
one), there seems very little
hope. If I don’t see a
cure in my lifetime, I hope
my campaigning helps in
some way bring it about for
future generations, so
another child won’t have to see
their body wither and
die before their time
Welcome to my blog!
Hi there!
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
Showing posts with label interested. Show all posts
Showing posts with label interested. Show all posts
Thursday, 27 September 2012
Thursday, 26 April 2012
DMD life art & me Ebook now FREE
Great news! For one month only my EBOOK of DMD LIFE ART & ME is FREE! That's right it's absolutely free!! It won't cost YOU a penny! All you need to do is visit smashwords.com and buy the version that suits your device!
If you know someone who might be interested in learning about DMD, then point them in the direction of this fantastic offer!! It will cost them NOTHING to learn about the devastating effects of this disease and to find out how someone lives with it positively.
Please visit here to receive your FREE ebook; https://www.smashwords.com/books/view/69702
(Offer lasts until the 26th of May, then a price of $3.00 will apply)
As ever if you are a fan of the traditional book, then you can buy my paperback version for the very reasonable price of £9.99 ($18.99) here; http://duchennemen.net16.net/Buy-my-book-s/
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
If you know someone who might be interested in learning about DMD, then point them in the direction of this fantastic offer!! It will cost them NOTHING to learn about the devastating effects of this disease and to find out how someone lives with it positively.
Please visit here to receive your FREE ebook; https://www.smashwords.com/books/view/69702
(Offer lasts until the 26th of May, then a price of $3.00 will apply)
As ever if you are a fan of the traditional book, then you can buy my paperback version for the very reasonable price of £9.99 ($18.99) here; http://duchennemen.net16.net/Buy-my-book-s/
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
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