The impact

I talk a lot about how DMD affects myself or others with Duchenne's living like I do but my book has had many unintended consequences. One such consequence was definitely helpful for my health. Every week my mum has carers in to look after me for a few hours and it's vital they don't turn up with colds or infections because I could catch it. You see in my book I go through the time I ended up in intensive care with pneumonia fighting for my life. All of that started from a fairly innocuous cold. One of the leaders of the carer company read my book and has made it more implicit to the carers that they not come to my house ill. My book has helped a few people 'get it' and grasp how dangerous DMD can be.

Extract

...In the afternoon the nurses and doctor...had their usual patient meeting about me. They were quite concerned that my oxygen saturations were not rising above eighty percent. All sorts of drastic interventions were being discussed such as the need for permanent oxygen to be used or to start me on a more invasive ventilator....

Read more in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My art can be viewed here; www.artwanted.com/thebigG2005


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time

JUST 3 days left.

FREE EBOOK offer coming to an end soon!!! JUST 3 days now!!!!

I won't be back till there's just one day left in this ebook offer! So you really haven't got long left until this offer ends. I've had a great response with over 50 downloads so far, you can certainly increase that and it's totally FREE. Let your friends know, if they have never heard of DMD they can find out for FREE. There's no better time than now!

Extract;
...When I was about 18 months old my mother noticed I wasn’t moving around like I should have been, my sisters could run rings around me. I was often bumping into things and holding on to furniture whilst walking. My mother was obviously concerned, so she contacted the health visitor and our family doctor...

Read more about the genetics of the disease and how I've coped with Duchenne's in my book DMD LIFE ART & ME!

Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 3 days left!!!!!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

Adjusting to the new

Don't forget my FREE ebook offer is still on!!!!! 10 days to go!!!!!!!!

My terrible year was behind me in 2002 but I had a lot to get used too. I had this strange mini tracheotomy and a ventilator to use. The ventilator was pretty easy to get to grips with but the tracheotomy was a whole different ball game. Not that the hole caused me problems, it was finding out whether I needed to clear my chest or not.

Extract;
...Every time I thought my chest was clear of fluid and told my mother to remove the catheter, “Right, I’m done Mam” I would say but two or three minutes later I could hear and feel secretions again. This meant I had to redo suction...

Eventually I got it more or less under control and really felt better but it was certainly a trial getting it right.

Read how I adjusted to all the new things in my life in my book DMD LIFE ART & ME!

Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 10 days left!!!!!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.