Great Inventions

Available in EBOOK and PAPERBACK versions

There have been some fantastic inventions in the world of Duchenne that have prolonged life by many years and offered many improvements to the quality of life. Ventilators have really come along from the days of the iron lung. The choices are amazing now. Non invasive ventilators using discreet nasal masks that use the natural way of breathing instead of tracheotomy tubes (although they help quite a few) have been very important in lengthening life. Something that isn't medical but has made my life easier has been voice recognition software. I wrote my new book using that. There are so many more inventions out there, the options are endless!

Extract;
...I came across an even better art program. It ... featured a very strange drawing of a hand with many fingers on the box. It was most definitely eye catching and I
became even more excited......

An art program available on the computer was so very liberating and definitely a great invention for me! You can read about the great inventions in my life in my book DMD LIFE ART & ME!


EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

The great leveler

Available in EBOOK and PAPERBACK versions

The great leveler...

They used to say smallpox was a great leveler but DMD is very similar. It doesn't matter whether you are rich or poor, from the northern hemisphere or from the southern hemisphere, white black or yellow DMD affects all cultures. Anyone could have a child with DMD, it can happen spontaneously as well as genetically. Mercifully it is NOT contagious.

Extract;
....These [blood tests] showed extremely high Creatine Kinase levels and [the doctor] thought I had something called Muscular Dystrophy .... Creatine Kinase is an enzyme, which when released in elevated levels could indicate amongst other things muscle disease. A few weeks later my parents were told to take me for a muscle biopsy .... It was explained to my parents that my biopsy result came back positive for a disease called Duchenne Muscular Dystrophy ... [a] severe terminal muscle wasting genetic disease that gradually kills all the body’s muscle cells...

That was all back in 1986 for me. In amongst all this bad news there are overwhelming positives. Especially the attitude and sheer determination found in all those living with DMD! The exceptional parents and caregivers that go that extra mile and the awesome interconnected DMD community. Read more about positive determination in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-book-s/


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

JUST 3 days left.

FREE EBOOK offer coming to an end soon!!! JUST 3 days now!!!!

I won't be back till there's just one day left in this ebook offer! So you really haven't got long left until this offer ends. I've had a great response with over 50 downloads so far, you can certainly increase that and it's totally FREE. Let your friends know, if they have never heard of DMD they can find out for FREE. There's no better time than now!

Extract;
...When I was about 18 months old my mother noticed I wasn’t moving around like I should have been, my sisters could run rings around me. I was often bumping into things and holding on to furniture whilst walking. My mother was obviously concerned, so she contacted the health visitor and our family doctor...

Read more about the genetics of the disease and how I've coped with Duchenne's in my book DMD LIFE ART & ME!

Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 3 days left!!!!!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.