I recently shared a link to my new poetry book Poetic Diversions which you can see just below this post. I realize this group is for my autobiography DMD LIFE ART & ME but this new book is certainly relevant to Duchenne's. There are roughly ten poems focusing on DMD in one chapter alone! My particular favourite is a dedication to all those young children living with DMD who stay so positive through everything that's thrown at them.
Here's an extract;
....The next poem I would like to share is called; I know what strength is:
I know what strength is...
It is that metal, that mental metal,
It is toughing it out on that lowest day but still you stay,
It is when all hope is gone but you smile through it, holding on,
Not the reserve of body builders, its just you, me and the meek,
Battling the system, but we will them, change it, make it right....
You can read the rest in my new Ebook Poetic Diversions right here: https://www.smashwords.com/books/view/206857
As ever you can still buy my five star rated autobiography DMD LIFE ART & ME here:
EBOOK available here; https://www.smashwords.com/books/view/69702
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
All links available in my website here; http://duchennemen.net16.net/Buy-my-book-s/
Foreword to DMD LIFE ART & ME
Foreword
I’m
Ian Griffiths from South Wales.
This book is a story of my
life so far up to the
age of twenty five years. I
live with and suffer from
the ill effects of DMD
which stands for Duchenne
Muscular Dystrophy. It is a
severe muscle wasting
disease and a life limiting
terminal illness. It won’t
kill you in six months in
the traditional sense of
‘terminal’, but it’s far
crueller than that, it steals
every muscle in your body
first and then kills you,
anywhere up to the age of
thirty. There have been
cases of men living past
that into their forties and
fifties but only with
drastic interventions such as
ventilators and
tracheotomies, more on this can
be found by reading on.
I
hope to cover a few things in this
book, from a history of
my childhood years to a
more detailed history from
sixteen years onwards
and finally onto my current
problems and triumphs. At
times things I write may
make you smile or may make
you pause and think about the
seriousness of life with
this devastating disease.
I really hope there will
be a cure but currently for
us supposedly ‘older’ guys
with DMD (over twenty
one), there seems very little
hope. If I don’t see a
cure in my lifetime, I hope
my campaigning helps in
some way bring it about for
future generations, so
another child won’t have to see
their body wither and
die before their time.
Welcome to my blog!
Hi there!
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
Showing posts with label one. Show all posts
Showing posts with label one. Show all posts
Monday, 23 July 2012
Thursday, 24 May 2012
One thing leads to another
It's strange how thinking about one thing can lead somewhere totally different. I was thinking whether I would be father one day but quite bizarrely I started searching through software on a popular shopping site. That led me to find an art program and from then on I became an artist!
Extract;
...As my father was sitting nearby I quickly showed him the new art creating
software and we bought it there and then....
After six years I'm still learning new styles and techniques. I currently have 97 pieces of art and have sold a few pieces too!
You can see some of my favourite works of art in both the paperback and ebook versions of my book DMD LIFE ART & ME!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only 4 days left!!!!!
You can visit my art gallery here; http://www.artwanted.com/artist.cfm?ArtID=66134&IRV=36
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
Tuesday, 22 May 2012
Remembering
FREE EBOOK offer still on!!! Just 6 days to go now!!!
My friend Carl mentioned he was remembering those with DMD who have died. I thought I would also remember some of my friends who's lives were cut short by this cruel disease. I would just like to take this chance to mention John, Stuart and Sam, I miss these guys and I still find it strange that they aren't here.
My book is dedicated to Sam Morgan, he was a great positive man even though he was really struggling with this condition.
Extract;
...This book is dedicated to my dear friend ... Sam Morgan. He was sadly and cruelly taken in ... 2010 by the deadly claw of this muscle disease. Your kind, loving
and brave soul will be fondly remembered ever more....
So this one is to remember not just my friends but all those who sadly died. All our thoughts go out to the family members who remain. I believe one day we'll all be seeing each other again one way or another. Keep on hoping for the best!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only 6 days left!!!!!
My friend Carl mentioned he was remembering those with DMD who have died. I thought I would also remember some of my friends who's lives were cut short by this cruel disease. I would just like to take this chance to mention John, Stuart and Sam, I miss these guys and I still find it strange that they aren't here.
My book is dedicated to Sam Morgan, he was a great positive man even though he was really struggling with this condition.
Extract;
...This book is dedicated to my dear friend ... Sam Morgan. He was sadly and cruelly taken in ... 2010 by the deadly claw of this muscle disease. Your kind, loving
and brave soul will be fondly remembered ever more....
So this one is to remember not just my friends but all those who sadly died. All our thoughts go out to the family members who remain. I believe one day we'll all be seeing each other again one way or another. Keep on hoping for the best!
Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/
Don't forget my FREE e-book offer!!!!! For one month only until the 28th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702
Only 6 days left!!!!!
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