Available in EBOOK and PAPERBACK versions
It was so liberating to go out to visit my friend yesterday. We drove through amazing breathtaking picturesque scenery. I really enjoyed that and loved the different colours of the trees. It's great not to think on DMD but to appreciate God's beauty. I even got some photo's in from mom (only a tiny reminder of DMD), great art inspiration. Just what I needed plus it was awesome to see my friends.
Extract;
...I liked to go on day trips away from our main holiday destination to visit museums and other interesting sites. I’ve seen an airplane museum, train museum and various
shopping areas. I took my chair (reluctantly) on a canal barge and on a boat cruising up Lake Ambleside in Lancashire....
Enjoy those precious moments in your lives! You read through mine in my book DMD Life art & me!
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
All links available in my website here; http://duchennemen.net16.net/Buy-my-books/
EBOOK available here; https://www.smashwords.com/books/view/69702
My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
