When I was around twelve to fourteen I started researching DMD on the internet. I looked at terms like heart complications and breathing problems. I went through the list thinking I've got that and that but not this, this and this. I presumed in my naivéty that 'Oh I'd never get those symptoms'. I just couldn't equate that to me!
Extract;
...To me I thought I would go on and on staying the same; not equating what I had learnt about my DMD to me possibly getting worse...
As I got older the reality quickly set in and all the list had said I developed. Follow me on my travels through Duchenne's in my book DMD LIFE ART & ME!
Available as a PAPERBACK here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Get you very reasonably priced EBOOK here; https://www.smashwords.com/books/view/69702
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
