Food for thought

Available in EBOOK and PAPERBACK versions

I remember a study (I forget the title) about DMD that mentioned eating and something that definitely affects me. It mentioned those older individuals who after eating have breathing difficulties because their full stomachs push on their lungs. It's worse for me because I have scoliosis which has already impacted my breathing. I find after eating my final meal of the day I can't wait to go on my ventilator because I find it difficult to comfortably breathe. As my stomach empties this difficulty starts to lift and my breathing is less laboured on my ventilator.

Extract;
...I ended up on a ventilator at 16 and I have scoliosis which isn’t very good at all and has caused complications...

It's strange the kind of things you see and experience living with DMD. Read more on my many varied adventures with food in my book DMD LIFE ART & ME.

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

EBOOK available here; https://www.smashwords.com/books/view/69702

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.