Food for thought

Available in EBOOK and PAPERBACK versions

I remember a study (I forget the title) about DMD that mentioned eating and something that definitely affects me. It mentioned those older individuals who after eating have breathing difficulties because their full stomachs push on their lungs. It's worse for me because I have scoliosis which has already impacted my breathing. I find after eating my final meal of the day I can't wait to go on my ventilator because I find it difficult to comfortably breathe. As my stomach empties this difficulty starts to lift and my breathing is less laboured on my ventilator.

Extract;
...I ended up on a ventilator at 16 and I have scoliosis which isn’t very good at all and has caused complications...

It's strange the kind of things you see and experience living with DMD. Read more on my many varied adventures with food in my book DMD LIFE ART & ME.

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

EBOOK available here; https://www.smashwords.com/books/view/69702

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

Making the best out of a bad situation

Available in EBOOK and PAPERBACK versions

I always try to look for the positive in every situation. What comes to mind is a trip to a hospital appointment to find out how bad my breathing was etc and afterwards I went to a marina and got some artwork ideas. It was a perfect distraction to the humdrum of DMD. Whenever I get ill one thing I rarely seem to lose is my sense of humour. After all having a laugh can help you feel better!

Extract;
....I’ve always liked sunsets and sunrises and had a really pleasurable time making this [artwork]. It just goes to show how positive reinforcement can lead to even greater things....

The first piece of art I uploaded to an art website received positive feedback even though the DMD I have limits the types of art I can produce. Never let limits hold you down, there's always an alternative.

Find out more in my book DMD LIFE ART & ME!
 
EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

The benefits of a positive attitude

Available in EBOOK and PAPERBACK versions

When a DMD problem hits, such as the loss of walking ability or transitioning from breathing to assisted ventilation, depression and distress are very easy traps to fall in to. A positive attitude can change your outlook very much, thinking what you still can do in my experience really does help! A negative attitude can quickly lead to depression and can even precipitate further declines in health.

Extract;
....Somehow I’ve developed a strength or resolve just to carry on with a positive demeanour. It is so hard to keep the ‘brave’ face on; it’s as if God has just given me enough to get through each problem....

Read my battles through depression and positivity in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.