Puree pioneer

Ever since 2007 I've been eating a fully pureed diet and really enjoying food again. Before '07 I was struggling to shove potato fritters and breaded fish past mouth into my stomach. Feeding time was not pleasurable at all because I thought the next mouthful would lead to a choking incident. I had dropped weight considerably too and when I discovered I was 88 pounds I knew things had to change. Seemingly by coincidence I was given pureed food to try and finally I enjoyed a meal!
There are a few tiny inconveniences however as the variety is quite limited and you miss eating different textures. You can deal with that by remembering food is you're energy and it's better to eat than not. Although I'm slowly increasing the amounts of variety like this morning I tried some macaroni cheese from a tin and poured it over some liquidized scrambled eggs. I really enjoyed the creamy cheese and pasta and was extremely happy that it blended perfectly. I'm becoming increasingly adventurous with different kinds of recipes and have started adding garlic and occasionally herbs to my meals. A great resource I use for some of my recipes is from Leicestershire NHS pureed food guide find it here. So go on if you're struggling with solid food and have choked then why not try a pureed diet!

Read more about my amazing journey from poor eater to a puree pioneer in my book DMD LIFE ART & ME!


EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My art can be viewed here; www.artwanted.com/thebigG2005


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time

Food for thought

Available in EBOOK and PAPERBACK versions

I remember a study (I forget the title) about DMD that mentioned eating and something that definitely affects me. It mentioned those older individuals who after eating have breathing difficulties because their full stomachs push on their lungs. It's worse for me because I have scoliosis which has already impacted my breathing. I find after eating my final meal of the day I can't wait to go on my ventilator because I find it difficult to comfortably breathe. As my stomach empties this difficulty starts to lift and my breathing is less laboured on my ventilator.

Extract;
...I ended up on a ventilator at 16 and I have scoliosis which isn’t very good at all and has caused complications...

It's strange the kind of things you see and experience living with DMD. Read more on my many varied adventures with food in my book DMD LIFE ART & ME.

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

EBOOK available here; https://www.smashwords.com/books/view/69702

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

No Guarantees...

FREE e-book offer still on!!!!!!! Just 7 days to go now!!!!! We are in the last week!

Last night I was in bed thinking about eating. That can be a frustrating experience indeed! I was thinking about eating a lovely juicy red apple and imagining what it tasted like! Then I realised I just simply could not eat that. I have my work cut out coping with this but faith most certainly get's me through.

Extract;
...I was discussing with a nurse about my eating difficulties and they suggested that I try the puree menu the hospital had.....

Like it says above I am fortunate enough to eat pureéd food which means that I can experience the tastes of at least a few things. I know people with Duchenne's who are totally tube fed and I can only imagine how they feel.

It is not all doom and gloom though as I also know a lot of people with Duchenne's who can still eat the conventional way! It just goes to show that they are no guarantees even in DMD. So it is definitely worth staying positive as there is always someone worse off than you.

Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

 Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 7 days left!!!!!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.