Ever since 2007 I've been eating a fully pureed diet and really enjoying food again. Before '07 I was struggling to shove potato fritters and breaded fish past mouth into my stomach. Feeding time was not pleasurable at all because I thought the next mouthful would lead to a choking incident. I had dropped weight considerably too and when I discovered I was 88 pounds I knew things had to change. Seemingly by coincidence I was given pureed food to try and finally I enjoyed a meal!
There are a few tiny inconveniences however as the variety is quite limited and you miss eating different textures. You can deal with that by remembering food is you're energy and it's better to eat than not. Although I'm slowly increasing the amounts of variety like this morning I tried some macaroni cheese from a tin and poured it over some liquidized scrambled eggs. I really enjoyed the creamy cheese and pasta and was extremely happy that it blended perfectly. I'm becoming increasingly adventurous with different kinds of recipes and have started adding garlic and occasionally herbs to my meals. A great resource I use for some of my recipes is from Leicestershire NHS pureed food guide find it here. So go on if you're struggling with solid food and have choked then why not try a pureed diet!
Read more about my amazing journey from poor eater to a puree pioneer in my book DMD LIFE ART & ME!
EBOOK available here; https://www.smashwords.com/books/view/69702
Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1
Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1
My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857
All links available in my website here; http://duchennemen.net16.net/Buy-my-books/
My art can be viewed here; www.artwanted.com/thebigG2005
Foreword
I’m
Ian Griffiths from South Wales.
This book is a story of my
life so far up to the
age of twenty five years. I
live with and suffer from
the ill effects of DMD
which stands for Duchenne
Muscular Dystrophy. It is a
severe muscle wasting
disease and a life limiting
terminal illness. It won’t
kill you in six months in
the traditional sense of
‘terminal’, but it’s far
crueller than that, it steals
every muscle in your body
first and then kills you,
anywhere up to the age of
thirty. There have been
cases of men living past
that into their forties and
fifties but only with
drastic interventions such as
ventilators and
tracheotomies, more on this can
be found by reading on.
I
hope to cover a few things in this
book, from a history of
my childhood years to a
more detailed history from
sixteen years onwards
and finally onto my current
problems and triumphs. At
times things I write may
make you smile or may make
you pause and think about the
seriousness of life with
this devastating disease.
I really hope there will
be a cure but currently for
us supposedly ‘older’ guys
with DMD (over twenty
one), there seems very little
hope. If I don’t see a
cure in my lifetime, I hope
my campaigning helps in
some way bring it about for
future generations, so
another child won’t have to see
their body wither and
die before their time
Welcome to my blog!
Hi there!
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!
Ian,
Author and Digital Artist
Tuesday, 30 October 2012
Puree pioneer
Labels:
Autumn,
book,
cheese,
choking,
difficulties,
DMD,
eating,
food guide,
macaroni,
NHS,
October,
pleasure,
puree diet,
recipes,
tuesday
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