Small corrections

Available in EBOOK and PAPERBACK versions

I've been having troubles driving my wheelchair lately and I am looking for a different easier way of controlling it. In the meantime a wheelchair services man just tightened up my current controller for me. It had more play in it than a worn out steering column on an old car! It has made a world of difference having it tightened, driving is so much easier now!

Extract;
...my father and I messing around with a cricket ball and my mother resting under a parasol. I was holding a small piece of wood which was light and straight, whilst my arm rested three inches in the air on a soft foam pad that [my sister] had made...

The small correction allowing my arm to rest on a piece of foam helped me play a game just a few years ago. It only takes a small correction to make a life that bit easier.

Read more about those little corrections in my life in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

Equipment takes on a new dimension...

For most of us 'equipment' could mean that new camera you always wanted or a new car to get to work. Equipment takes on a very different meaning for those with DMD. For me it means basic equipment just to function normally. Without hoists, a wheelchair, ventilators, food blenders and a special bed I couldn't even get to my computer. I'm extremely grateful and glad these things have been invented!

Extract;
...I had to have additional equipment added to my house, so I could be transferred from a wheelchair to my bed; also to get on the toilet and in my bathtub. I had two ceiling hoists installed...

It's so vital to have these helpful pieces of equipment to make life that bit easier. Read about all those helpful devices in my book DMD LIFE ART & ME!

You can buy my fantastic EBOOK version here; https://www.smashwords.com/books/view/69702

Available through my website here; http://duchennemen.net16.net/Buy-my-book-s/


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

It's how you look at it...

When I first needed a lift fitted in my house we were grateful for the local councils help but they soon complicated things! To them just getting a lift in was their only priority. They didn't care where it went in my house suggesting our living room! It would have blocked the window and completely obstructed our lives.

Extract;
...There was a huge fuss made by the council, originally they wanted us to have the lift installed in our living room! That would have been highly inappropriate and would have blocked the light entering through our front window. It would be difficult welcoming people into your main living area with a hulking steel box in the way...

My family had to pay for a extension to the house and that housed the new lift. It is all a question of how you look at it!

Read more about a different perspective in my book DMD LIFE ART & ME!

Available at Amazon right here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

You can get your reasonably priced EBOOK version for $3.00 here; https://www.smashwords.com/books/view/69702

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.