It's how you look at it...

When I first needed a lift fitted in my house we were grateful for the local councils help but they soon complicated things! To them just getting a lift in was their only priority. They didn't care where it went in my house suggesting our living room! It would have blocked the window and completely obstructed our lives.

Extract;
...There was a huge fuss made by the council, originally they wanted us to have the lift installed in our living room! That would have been highly inappropriate and would have blocked the light entering through our front window. It would be difficult welcoming people into your main living area with a hulking steel box in the way...

My family had to pay for a extension to the house and that housed the new lift. It is all a question of how you look at it!

Read more about a different perspective in my book DMD LIFE ART & ME!

Available at Amazon right here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

You can get your reasonably priced EBOOK version for $3.00 here; https://www.smashwords.com/books/view/69702

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

A book worth writing!

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I never thought I'd even write a book let alone an autobiography. Who ever heard of an autobiography coming from a twenty something? I know some very public figures may have at that age, but I'm just a hidden recluse of very small standing!

It is quite astounding that it only took ten months to write over ninety two thousand words! Quite a daunting task for a complete writing novice. I scraped though with the odd grammatical faux pas but overwhelmingly the response has been positive. It's been spread around a bit too, with stories of my book being passed around colleagues, families and being read multiple times. So for awareness alone that really makes it a book worth writing.

Extract;
...This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy....

Read through DMD LIFE ART & ME a very worthwhile book!


If you still prefer the look and feel of a real book then please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 5 days left!!!!!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

School days.

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Everyone needs an education, especially so for those with DMD. The majority of those living with DMD have perfectly capable minds. Such a mind needs teaching and molding!

I think for most children getting up in morning on a school day is a major chore! It is usually a bit more of a hassle for those with DMD! Just getting dressed might take some thought, then waiting for accessible transport, even just trying to find a safe place to unload can be fraught and then getting around school requires resourcefulness. After all that I still quite enjoyed school and learning, I was not to fond of homework though ha ha!

Extract;
...My usual school day routine was to be up at quarter past seven in the morning, eat breakfast usually golden brown toast with jam or [chocolate spread] and then I’d be whisked upstairs so my mother could dress me...

That was only a taster, read more about my high school starts in my book DMD LIFE ART & ME!  


Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 19 days left!!!!!

Vacation memories

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Vacation memories.

I don't mention every vacation I've been on in my book or it would be about 1000 pages long! I do mention a few of the places I've been too. Around the same time as we got drenched in Lancaster, my family and I went to Lake Ambleside in the Lake District in NorthWest England.

After some huge persuading I reluctantly rolled my wheelchair on to a boat. I really don't like being on anything that floats at the best of times! However I really enjoyed it once we were underway looking at the beautiful scenery that reminded me of home.

Extract;
...I took my chair (reluctantly) on a canal barge and on a boat cruising up Lake Ambleside in Lancashire...

Read about more my vacation adventures in my book DMD LIFE ART & ME! (For you e-book readers turn to page 32)



Please visit here to buy my paperback version; http://duchennemen.net16.net/Buy-my-book-s/

Don't forget my FREE e-book offer!!!!! For one month only until the 26th of May my e-book version of DMD LIFE ART & ME is FREE, you can get your FREE version here; https://www.smashwords.com/books/view/69702

Only 23 days left!!!!!



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.