Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Tuesday 30 October 2012

Puree pioneer

Ever since 2007 I've been eating a fully pureed diet and really enjoying food again. Before '07 I was struggling to shove potato fritters and breaded fish past mouth into my stomach. Feeding time was not pleasurable at all because I thought the next mouthful would lead to a choking incident. I had dropped weight considerably too and when I discovered I was 88 pounds I knew things had to change. Seemingly by coincidence I was given pureed food to try and finally I enjoyed a meal!
There are a few tiny inconveniences however as the variety is quite limited and you miss eating different textures. You can deal with that by remembering food is you're energy and it's better to eat than not. Although I'm slowly increasing the amounts of variety like this morning I tried some macaroni cheese from a tin and poured it over some liquidized scrambled eggs. I really enjoyed the creamy cheese and pasta and was extremely happy that it blended perfectly. I'm becoming increasingly adventurous with different kinds of recipes and have started adding garlic and occasionally herbs to my meals. A great resource I use for some of my recipes is from Leicestershire NHS pureed food guide find it here. So go on if you're struggling with solid food and have choked then why not try a pureed diet!

Read more about my amazing journey from poor eater to a puree pioneer in my book DMD LIFE ART & ME!


EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My art can be viewed here; www.artwanted.com/thebigG2005


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time

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