Things you really miss

I remember in my friends film "A life worth living" there was a part that I can relate too this week. I was in a position where I really needed to comfort someone and the one thing they needed was a hug but I just simply couldn't. It makes you feel utterly inadequate, all I could do was say "Are you alright?" and that just seems silly now. Back to that film, my friend met a couple whose son was recently diagnosed with DMD and he was in the same position as myself unable to hug them. This is something that isn't mentioned in an ordinary DMD textbook with its list of cold facts. When you live through this disease it hurts mentally as well as physically.

The one thing I can't do is to get down in the dumps about it. It is incredibly hard to do this but often looking at the things you can do helps. On many occasions I've made digital art gifts to give to friends and that certainly does help because I love giving. Whatever way you do it stay positive!

Read more in my living textbook autobiography DMD LIFE ART & ME!        


EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My art can be viewed here; www.artwanted.com/thebigG2005


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time