Sacrifices you make

This isn't primarily about me but there are definitely sacrifices you make living with DMD. You must gradually put up with a certain loss of dignity living with DMD that's certainly true. Initially it starts with being dressed by someone else then relying on others just to use the bathroom and then help from others to do anything and even to stay alive. It's great to learn how to work with others but for the whole of your life it can be relentless but positivity and a certain can do attitude will get you through it! Many have sacrificed ever having relationships because of their current situations be it stuck in an institution, living at home or constantly messing relationships up (my problem) or even just never getting the opportunity. Totally understandably this can be devastating to those living with DMD it's very hard and I have been there myself. DMD gets in the way a lot when dating and that can make it that bit harder anyway. Too often dwelling on these shortcomings and the lack of relationships can lead to depression and on top of everything this can push people over the edge. There's a way to cope however and that is dwelling on a goal, we each need to find a goal that works for us or maybe a better one may be shown to you.

Read my ups and downs regarding the above topics in my book DMD LIFE ART & ME!

EBOOK available here; https://www.smashwords.com/books/view/69702

Available on Amazon USA here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288120811&sr=8-1

Available on Amazon UK here; http://www.amazon.co.uk/DMD-LIFE-ART-AND-ME/dp/1907652337/ref=sr_1_1?ie=UTF8&s=books&qid=1288105302&sr=8-1

My new Ebook Poetic Diversions available to buy here; https://www.smashwords.com/books/view/206857

All links available in my website here; http://duchennemen.net16.net/Buy-my-books/

My art can be viewed here; www.artwanted.com/thebigG2005


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time