Diet time again? But not what you think...

It seems to be that time of year when everyone needs to diet or change themselves. The DMD diet isn't glamorous or a fad, it's a strange eat it while you can diet until you can no longer eat in the usual sense. You start off young eating all the joys of food you can and usually get pretty large. Then the disease kicks in, appetites decline, swallowing gets really hard or chewing wears you out and you lose weight quicker than any celebrity! There is a way to gain weight back and it invovles supplements and foods higher in fat and I personally used full fat milkshakes. So while the rest of the world is obsessed with losing weight we are fighting to keep some. I wouldn't recommend a DMD diet, its major drawback is dying young and missing out on something we enjoy.

Extract;
....It’s hard thinking back to what I could eat then. I will always have memories of wonderful restaurants and am grateful to have tasted such a vast variety of foods while I could. Losing this pleasure in life was and still is a huge body blow to me...

This is no pity party however, DMD will be cured and this diet will end up in the bin with many others! Read about how someone lives with Duchenne whilst waiting for this cure in my book DMD Life art & me, and buy here; http://duchennemen.net16.net/buymybook.html




Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.