Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Saturday 11 February 2012

Update on sales...


Hi all my readers and followers I'd like to give you a few stats for the last few weeks,

Approximate USA Amazon sales; 3

UK Amazon sales; 0

Ebook sample downloads; 3

Ebook sales:0

Blog interest 209 views (Thank you!!!!)

Email responses to books, 1 absolutely fantastic email :).

Total books sold since Oct 2010, confirmed 120, approximately 60+ more. Near 200 :)

I know things are looking bleak and that times are really tough, hopefully next week I'll have better results.

For those who have bought my book, really my sincerest thank you. Pass on the message.

For those who are interested in buying my book, If bought through Action Duchenne 100% of the proceeds goes to them (limited stock) Roughly £200 given so far. If bought through Amazon then 50% of my proceeds go to Action Duchenne as well. Over £90 given so far. So not only do you help me you those who are affected. For futher information on Action Duchenne go here,

To buy visit DuchenneMen here or UK Amazon here or USA Amazon here!

Also I will not ever pressurize you into buying, if you genuinely are interested in reading about my life with DMD please do buy but if you just like following my blog and learning all things DMD please keep reading!

I'll post more statistics in the coming weeks to keep you informed.

Thank you,

With Love,

Ian




Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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