Funny fascination.. Not quite an oscar..

Many oscars have been given out recently, but everyone has their own memories like golden rewards shining in their mind.

One such memory makes me smile, when I was younger I used to have a carer take me out every week and we would go to the cinema or shopping. One cinema visit was hilarious and nerve wracking at the same time! It just goes to show how fickle memory is;

Extract;
....Once we arrived and presented our tickets, the cashier asked my age for the film. I said “I’m fifteen” confidently but [the carer] had forgotten this. He said “Oh no I’m sure he’s fourteen, you are fourteen aren’t you?” I’m quite embarrassed by this and tell the cashier that I was definitely fifteen. After a few tense glances the cashier reluctantly lets us through... We both laughed at his unsure memory. I’ll never forget the look on the cashiers face, it was priceless!

Read more of my funny moments in my book DMD Life art & me and buy here; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.