Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Sunday 26 February 2012

Stressing sickness....



Stress is no good for anyone, having the right attitude and keeping calm definitely combats this. However having that correct attitude is really hard to keep hold of!

In school, examinations and constant academic pressure always added to my stress and it led to a lack of sleep and irrational worries. I'll admit I'm no good under stress, but again the attitude is what it's always about.

Extract;
...Around May or June time we had two weeks of examinations. I was a nervous
wreck every morning before any exams. I didn’t hold up well under pressure, I would worry about doing badly and letting my teachers or parents down. I would often get a rumbling churning sick feeling in the pit of my stomach... If the pressure got really relentless I often picked up colds or infections. Those really didn’t help me....

Read how I coped through far more than exam stress in my book DMD Life art & me; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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