The only times of freedom...

Dreaming in my sleep seems the only time when I'm truly free as well as using my imagination. Although you'd think I'd dream about walking or running through forests, I don't always do that, sometimes I dream of me as I was when I was slightly stronger. I remember one such dream, I was playing a football game on my playstation and I remember thinking when I wake up I'll play it. I was getting all excited and then I woke up, remembering that my playstation was gone and all my games too and that I couldn't hold the controller anyway. That was a come down I can tell you! Thinking positively really helps!

Extract;
...A time when I could truly escape, dreaming of winning sports contests and climbing
mountains, but sadly I had to wake up weak again. That is a measure of the truly heartbreaking nature of Duchenne’s muscular dystrophy. I always try to fixate on the things I can do and that makes it a tiny bit easier to get through the depressing times...

See how I cope through the rough times in my life when depression lurked nearby and how I survive and thrive through the rest of my life in my book, DMD Life art & me. Please buy here; http://duchennemen.net16.net/buymybook.html and here


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.