Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Thursday 19 January 2012

Depression - a way out


A difficult subject for many is depression, it's a common part of DMD. Unsurprisingly, loss of mobility, repeated setbacks, failed relationships and tiredness all drag a person down.

Extract;
I couldn’t feel any happiness; ... I was quiet at home and constantly thought
about how awful I felt. Unlike me there were no smiles, very few jokes and a general malaise ... Why did this disease have to keep snatching things away from me? All these negative things collided in my brain,

But far from self pity there is a way out, and for me a combination of faith, and doing other productive things really turned me round :).

Extract;
At last I began to feel my depression lifting, I looked forward to my food and my smile came back. I felt renewed and determined after my inner turmoil settled. I wanted my
positivity back and I wanted to fight my DMD to not let it consume my thoughts; I had got through life by not dwelling on things.

Read how I coped and turned it all around in my book DMD Life art & me here; http://duchennemen.net16.net/buymybook.html

Don't take depression lightly.


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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