Vacations

Vacations or Holidays are often a rare highlight in a life of illness. As I have become older it's impractical to go on holiday, it often adds to the discomfort instead of being a recharging time away. When I was younger and less disabled, holidays were fantastic and the best one I had was in Disneyworld Florida!

Extract;
...Forty minutes later the plane started to taxi toward the runway, my sisters and I were excitedly bouncing in our seats. Suddenly the jet engines roared and we were thundering down the runway until we leapt into air like a graceful aluminium swan...

I had a blast seeing some old friends, going on some rides, visiting attractions, seeing parades, eating wonderful food, enjoying the sun and having family fun. We always fondly remember it!

Extract;
...Thus ended our holiday of a lifetime; we all have fond memories of our time in Florida. The people were fantastic and extremely kind. The transport system was excellent and wheelchairs were welcome everywhere; so much different than here. It will never ever be forgotten by any of us.

Read all I got up to while I could in my book DMD Life art & me, please buy here; http://duchennemen.net16.net/buymybook.html



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.