Comical Winter

It's another cold day today, while winter can be an uncomfortable time for those with DMD, there are still opportunities for humour even if at the time you weren't laughing!

One such occasion was during a blustery snowy winters day, trudging through the snow with me on a horse at riding school. It was one of those horses who could get distracted easily and well that's exactly what happened! Read this extract and you'll see;

Extract
....After a gentle ride past some snow banks the horse suddenly got startled and threw me off! I landed in some soft snow in a daze. My cousin was standing there laughing as my father chased after the bolting horse, I can remember his hat falling off and flapping behind him in a comical manner. He finally found the horse in a field. It was trying to catch up to some other galloping horses! If only we had a camera.....

What is it they say, never work with children and animals haha.

To read more hilarious stories and more sober tales then why not read my book DMD Life art and me. You can buy here; http://duchennemen.net16.net/buymybook.html

Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.