Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Monday 16 April 2012

Acknowledging


I've gone through my whole book in the last three months or so and I'd like to give some acknowledgments to people who have helped me out along the way!

First from my book, extract;
.....I’d like to thank all my family for being such good sports all through my writing adventure. Thanks to my Mother for all the care....

Obviously thanks first there to my mom! I could not write anything if my care wasn't so good! Thanks to Action Duchenne for all their help and selling copies of my book. Thanks for the memories life! And last but not least thank YOU to all who read and buy my ebook and paperback versions!

There's so much more to my book than a few extracts and pretty pictures, why not give it a whirl and jump in feet first exploring all things DMD! Also see who I personally thank in my book DMD LIFE ART & ME. Buy here in ebook or paperback form; http://duchennemen.net16.net/buymybook.html


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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