Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Sunday 1 April 2012

Reviewed...



A few months ago my book DMD Life art & me was reviewed by thebookbag.co.uk, they rate many books in a variety of genres and gave my book a 5 star rating! The first self published book to do so at their site. To read it yourself go here; http://www.thebookbag.co.uk/reviews/index.php?title=DMD_Life_Art_and_Me_by_Ian_A_Griffiths

Extract; ...with the disease have a life expectancy of between the late teens and mid-twenties. Ian's in his mid-twenties now and he's written DMD Life: art and me to explain what it really feels like to live with the disease. And when I say 'really feels like' I do mean that. Ian doesn't gloss over anything. When I picked the book up I thought I might not like the format. Ian takes his life year by year and devotes a chapter to each, with additional chapters for important or traumatic events. In actual fact the format is perfect as it allows you to appreciate how the disease progressed, how Ian felt and how his family coped with what was happening to them all....

Last day to take advantage of the 45% discount of my ebook DMD Life art & me, it's only $1.65 or £1.03!!!

To buy my ebook at reduced price and buy the paperback version of DMD LIFE ART & ME please visit here; http://duchennemen.net16.net/buymybook.html



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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