Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Thursday 29 March 2012

The end of my games console opens new doors



For a few years following 2001 I was pretty much stuck on my games console all day by 2004 I was struggling and eventually I had to give it away (I wrote sold in my book but I was in error).

Extract;....Increasingly I was finding it very difficult to play on my beloved [games console]. My hands could barely move, my fingers were very stiff and it would take me a long time just to press start....

Giving it up however has led to great things, just when all seems lost there's often a ray of sunshine behind a cloud. I got a voluntary job helping out on a online pool game, I became a self taught digital artist and am now an author too. Thank God indeed for these rays, I have been blessed so much!

So don't give up when you lose something because there might be hidden opportunity behind the corner. Just go with the flow and stay calm. Be happy :)

Read and buy my book DMD LIFE ART & ME here; http://duchennemen.net16.net/buymybook.html

Available in ebook and paperback!

(Ebook special offer!!!! For a limited time only my ebook has been reduced 45% to $1.65. Just enter this promotional code upon purchase; YZ38F Why not take this cool offer up to fill your Nook's, Kindles and digital editions with DMD knowledge!

Offer closes on April the 1st 2012.)


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

No comments:

Post a Comment