Technological wonders

I know the internet and computers have their problems but they sure do have their positive sides! I couldn't interact with the world and meet other friends who have DMD without them.

The great thing about computers now is the amount of technology out there to help people with disabilities. There's eye movement technology to move the cursors, theres voice recognition, lightweight mice and other input devices. It's very liberating.

Extract;...However my fingers do not move much at all, only one thumb [pushing my finger down] has enough strength to push the light mouse buttons. With the pointer speed set to maximum I can just about manage to operate a computer...

Buy my book here; http://duchennemen.net16.net/buymybook.html

Extra- Check out 2 other books on amazon by two other Duchenne authors, Misty Vanderweele's "In your face Duchenne Muscular Dystrophy All pain All glory" and Ricky Tsang's "Ridiculous: The Mindful Nonsense of Ricky's brain". There's loads more too!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.