Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Sunday 4 March 2012

Was this it....


In 2001 my life took a huge turn for the worse. My weak cough and the lack of monitoring finally caught up with me. The cold I had turned into pneumonia in the space of four days.

An attempt to clear my chest failed and actually accelerated an emergency life or death set of events. I thought my clock had run out and the time had stopped. It appeared that my life had ended.

Extract;
...I felt a huge plug of mucus move in my trachea I tried to cough it out but it got firmly stuck. I tried desperately to breathe my lungs burst into pain as they ached for some life giving air. I tried harder and harder to breathe and the pain intensified beyond anything I knew. My heart pounded so loudly in my ears. I was drowning in a pool of my own fluid secretions. I knew something bad was going happen. Suddenly my eyes rolled back and everything went black at the same time my body slumped dangerously back. Was this the end of me...

By an Almighty power, it wasn't my end yet! I pulled through. Read what happened next! In my book DMD life art and me; http://duchennemen.net16.net/buymybook.html

Ebook available here; Smashwords.com



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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