The unexpected benefits of a non invasive ventilator

During the really hot summer we had in 2003 in the UK, it was so hot that everyone was just exhausted sitting down. I like the temperatures fairly warm anyway but that was something else. We Brits aren't used to extreme heat although who really is! If you have air conditioning it's manageable but that's not common here!

The only relief I got was on my non invasive ventilator at night, the cool air was delightful. I used to let a small amount leak out to cool me down (I wouldn't recommend doing that unless you're sure your breathing is up to it). It was great when the heat dropped in the Autumn.

Extract;
....It had another benefit too, if whilst on the ventilator I moved my chin a few millimetres a cool blast of air would hit my clammy body and provide some instant cooling relief....

See how I resourcefully conquered many more problems in my book DMD LIFE ART & ME, buy the ebook and paperback here; http://duchennemen.net16.net/buymybook.html

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Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.