Fresh perspective....

After the moment I thought I had died, I woke up bleary eyed and in a blur in a strange room. As I came round more I realised I was stuck behind a facemask having cooling air pushed into my lungs. I was so immensely grateful to be alive, I thought I was gone minutes earlier.

Extract; A few minutes after the ventilator was switched on I regained consciousness. I saw through bleary and short sighted eyes what looked like [the doctor]. I was overcome with emotion as the deep cooling breaths pumped in their delightful life sustaining air. I keep repeating myself over and over between breaths to [the doctor], "Thank you for saving ... my life!... Thank you for saving ... my life! "

My life had changed and I was looking at a new perspective, I had a long year ahead of me trying to recover. My lungs have never been the same and further problems lay ahead. You learn not to mess around with DMD. My naivety ended there, death is closer than we think. The one thing I never lost and was even galvanized was my positivity.

Follow through the pages the sometimes fraught and often positive life I've had post 16 in my book DMD Life art & me! Please buy here; http://duchennemen.net16.net/buymybook.html
Ebook available here; Smashwords.com


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.