Momentous times....

After weeks of recovery I thought I was over the worst, but my bad year continued, I was heading back to hospital in South Wales in danger once again as my throat was clogged up and I couldn't breathe.

I ended up in a hospital bed slumped over pleading to go back on the NIPPY ventilator I left behind only a few weeks prior. I wasn't messing about with my health and knew I needed help to breathe and sure enough within a day I was back in intensive care.

Extract;
..."I need the Nippy ... ugh ... I’m so tired dad ... I just need the Nippy!" I whispered out in tears to my father. I kept repeating my request to use the Nippy ventilator. Eventually after seeing me struggle to breathe and as the physiotherapists machines failed, the nurses had no option but to send me up to intensive care....

I only had another few months ahead before that horrible year ended and then I began a life of apparently no direction, find out what happened to me during that time in my book DMD Life art & me and buy here; http://duchennemen.net16.net/buymybook.html

Ebook available here;



Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.