Unforseen problems bring unexpected solutions....

We've all had unforseen problems, like a lightbulb breaking or a shelf that falls off the wall. Most people wouldn't get overly worried about it, they'd change the bulb or find a new shelf. Or they'd even rig up a temporary shelf or find a torch!

You need this kind of resourcefulness when faced with DMD. For me when I needed a nightly non invasive ventilator mask this meant I could no longer call out to my parents. My dad quickly found a solution;

Extract;
....Having my face enclosed in a mask presented an unforeseen problem, due to my voice being quite weak it was impossible for me to call my mother to help me out of bed. We solved this problem by purchasing a doorbell with a wireless button
press unit...

This ended up being a temporary measure so read my book DMD LIFE ART & ME to find out the long term solution which could help you too! Buy my book here; http://duchennemen.net16.net/buymybook.html

Never give up when faced with unforseen problems because you'll hopefully find unexpected solutions!


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.