Ebook special offer!!!! For a limited time only my ebook has been reduced 45% to $1.65. Just enter this promotional code upon purchase; YZ38F Why not take this cool offer up to fill your Nook's, Kindles and digital editions with DMD knowledge!
Offer closes on April the 1st 2012.
Extract of putting my mask on; ....While my mother and I talked she would prepare my mask ready for my nightly sleep on the Nippy Ventilator. Eventually after careful jostling my mask would be securely fastened onto my face and the air initiated, I would slowly drift into a deep sleep whilst clutching the switch in my right hand...
To buy the ebook and paperback of DMD LIFE ART & ME please visit here; http://duchennemen.net16.net/buymybook.html
Foreword
I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.
No comments:
Post a Comment