Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Wednesday 21 March 2012

Thoughts for the future...


Thoughts for the future....

After the horrifying couple of years I had from 2001 onwards, I ended up with no aims, no direction and no idea what I could do. I would just play on a games console eight hours a day, worrying about this and that and watching tv. Mind numbing boredom slowly crept in. I thought this couldn't possibly be it for me...

Extract; ...That brief period of uncertainty had made me wonder was there more to come for my life; looking up at the years ahead of me I just couldn’t see me sat in
front of a games machine...

If you can find an aim please do follow it through because the alternative is really no fun in the long run. Ironically losing the ability to play the games console changed my life. There's hope for everyone! Read how things changed in my book DMD LIFE ART & ME, buy the ebook and paperback here; http://duchennemen.net16.net/buymybook.html

(Ebook special offer!!!! For a limited time only my ebook has been reduced 45% to $1.65. Just enter this promotional code upon purchase; YZ38F Why not take this cool offer up to fill your Nook's, Kindles and digital editions with DMD knowledge!

Offer closes on April the 1st 2012.)


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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