Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Wednesday 28 March 2012

Liquized lunch....



I know personally many lads with DMD who may have swallowing issues, some can manage soft food, some struggle but manage usual food, some can't eat at all (using feeding tubes instead), some need liquidized food like me and some are completely fine.

We all deteriorate differently, which dispels the myth that all with DMD are the same.
I can only speak for myself personally, so here's how my problems started one sunny day,
Extract; ...One sunny morning I tried eating some fruit whilst my father fed me, I began chewing but as soon as the small food bits where ready to be swallowed, I just couldn’t activate my swallowing mechanism...

The rescue out of my problems came from pureed food, it happened seemingly by chance when I went to hospital on an unrelated issue. I was offered the puree menu and haven't looked back since. If you think you might benefit from a puree diet then look up pureed food and recipes online.

To read through my culinary catastrophe's and triumphs buy my book DMD LIFE ART & ME; Available in ebook and paperback here; http://duchennemen.net16.net/buymybook.html

(Ebook special offer!!!! For a limited time only my ebook has been reduced 45% to $1.65. Just enter this promotional code upon purchase; YZ38F Why not take this cool offer up to fill your Nook's, Kindles and digital editions with DMD knowledge!

Offer closes on April the 1st 2012.)


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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