Welcome to my blog!

Hi there!

This blog is related to my autobiography DMD Life art and me plus there will be non related posts. I have the disease Duchenne Muscular Dystrophy and that has left me in a near paralyzed state, I wrote this book in 10 months using one finger clicking one mouse button on one on screen keyboard! Be a follower by clicking in the box on the right and you'll get every new post I make. Feel free to join in with your comments and enjoy!

Ian,

Author and Digital Artist

Tuesday 20 March 2012

Repayment?



I was once asked this;

Extract;...Quickly he segued on to the topic of ‘responsibility’, he went on to ask me “How are you going to repay your parents for all the hard work and sacrifices they have made for you?” At the time I pretty much ignored his comment with a “Yeah, I suppose I’ll find a way” I knew it was highly improbable that I’d get a job because I was and still am ill....

This at the time made me feel terribly guilty, and I thought purely in terms of monetary means. I do have work now, selling my books and paintings but it's only really supplementary income for now. DMD doesn't stop everyone affected by it from working but it depends on their abilities as we're all different. At the time I was recovering from a terrible few years.

Thinking now there's ways we all can thank our parents, we don't need to pay them off specifically. We can love our parents, surprise them with 'just because' gifts, honour them by doing as they say and not answering back and we can talk, joke and laugh with them. That's how we can repay them for all their love and sacrifices. Owe man no thing except to love your neighbour as yourself.

Read more of these helpful tips in my book and see how my dad calmed me after my irrational guilt in my book DMD LIFE ART & ME and buy the ebook and paperback here; http://duchennemen.net16.net/buymybook.html

(Ebook special offer!!!! For a limited time only my ebook has been reduced 45% to $1.65. Just enter this promotional code upon purchase; YZ38F Why not take this cool offer up to fill your Nook's, Kindles and digital editions with DMD knowledge!

Offer closes on April the 1st 2012.)


Foreword

I’m Ian Griffiths from South Wales. This book is a story of my life so far up to the age of twenty five years. I live with and suffer from the ill effects of DMD which stands for Duchenne Muscular Dystrophy. It is a severe muscle wasting disease and a life limiting terminal illness. It won’t kill you in six months in the traditional sense of ‘terminal’, but it’s far crueller than that, it steals every muscle in your body first and then kills you, anywhere up to the age of thirty. There have been cases of men living past that into their forties and fifties but only with drastic interventions such as ventilators and tracheotomies, more on this can be found by reading on.
I hope to cover a few things in this book, from a history of my childhood years to a more detailed history from sixteen years onwards and finally onto my current problems and triumphs. At times things I write may make you smile or may make you pause and think about the seriousness of life with this devastating disease. I really hope there will be a cure but currently for us supposedly ‘older’ guys with DMD (over twenty one), there seems very little hope. If I don’t see a cure in my lifetime, I hope my campaigning helps in some way bring it about for future generations, so another child won’t have to see their body wither and die before their time.

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